In Sickness and in Health

Hope Andy brings you much cheer today!

Just adding my thoughts for you Maureen. I think you are wonderful...both in your philosophical attitude and your hands-on care. It's a very lonely place you are in...been there with my mum....and you are very brave. I hope you have success following up the excellent suggestions which have been made here. :hug:

You must push for all the help you can, SG - easier said than done, I know. It's important to look after yourself too as well as your husband. A few days a week at daycare for him will give you some much needed me time, get out of the house, see family, friends (I'm only in Warrington if you want a trip over!) Thinking of you and wishing you both better days ahead. x

Thanks for your kind post Clancy. Today carer due at 9.15. A phone call at 8.15 informed me there had been an incident at previous call and he would be late. That was fine as sg was asleep and I got on with sorting laundry and putting washing machine on. Had coffee, glanced through the paper and put on Olympics. Carer arrived at 10.15, asked me if they'd phoned and apologised. He wasn't too happy as they'd sent him on another call. When he'd protested saying he was due here at 9.15 was told they would ring me. Not his fault but a little frustrating and annoying. Why did they have to lie to me. He told me they lie to carers also.:angry::grrr:

Maureen, I seem to have been a bit distracted over the weekend and have only now seen your latest posts. How you are coping I don't know but, as everyone else has stressed you need to persevere with the carers no matter how frustrating their presence or absence is or how much Alan moans about them. Your friends on here are coming up with lots of helpful ideas so I hope that some of them work for you. Always remember that we are here for you to sound off at anytime. :grouphug:

Very hard for you SG. Hope things improve. Yes could look into direct payments to employ own carers, but then you are in charge of finding backup if someone is ill or when they are on holiday.

That morning episode is very typical for any care agency. Someone phones in sick so they have to have another carer to cover that. Or emergencies do arise with clients and the carers have to stay longer with them. Not enough staff who are of course paid very poorly for what they do. May become worse depending on realities of Brexit.

Very hard to be a carer for a loved one and respite is so vital. Don't know if there is a Carers' Centre near you where you could get some support and advice - meet up with others in the same situation, get a free massage etc. You probably don't have time to think about that now, but down the line could prove valuable.

I'm so sorry that things are so difficult for you just now. I hope that some daycare can be sorted out for Alan as soon as possible.You really need some free time. I hope that the helpful ideas from other forum members can help.
we are all here to listen so keep posting as we all care very much for you & Alan. I'm sure Andy's Gold medal gave you a lift. Much love:grouphug:

Thanks so much Rona, Josephine and Jean.....appreciate your kind posts. Alan does get on with the carers and I'm grateful for the respite from morning and evening jobs. I have looked into private care and it is very expensive, much more than I'd thought so will stick with this agency and reach out for all the extra help available. I don't want to bore you all but will post from time to time with updates or when I feel like screaming. Andy went a long way helpng me to feel normal and hopefully will be able to watch his U.S. matches Thanks again everybody. Lots of love to you all. X

Hope Andys golden triumph has cheered you up somewhat Mo. Love to Alan xx

It did Angie. Thanks. X