Lucky you!
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Lucky you!
SG - Glad to see the real SG has reappeared. Well Done to you. Will be interested to see what responses you get.
Alis - Sorry to hear about your hubby as well. Don't know about you but I enjoy writing my blog but I never seem to have enough time even though retired!!!
You are both an inspiration to us all and thank goodness for Andy Murray and this forum for helping us all through bad times.
Hello everyone, I thought with the tennis hiatus and before you all get involved in manic preparations for Christmas I'd give you an update. It's not good news I'm afraid. Some of you already know that at long last we have a positive diagnosis for supergramps' condition. He is suffering from Progressive Supranuclear Palsy or PSP. The neurologist told us be is a textbook case displaying all the symptoms with the exception of swallowing difficulties which we can expect in the future. The prognosis is 6-7 years after the onset. He has carers coming in morning and evening and they are wonderful. No longer do I discover a wet bed after someone has left. The bed is stripped, remade and bedding put in washing machine. If there is some time after putting him to bed ironing will be done for me. But it's when I'm on my own that I'm struggling. His mobility has worsened and often has to be transferred to commode by wheelchair. I don't even try to take him upstairs now. He has to be fed now so I have my meal after him. I sometimes think he will have to go in a Care Home but when I sit next to his chair and he clutches my hand tightly I know that won't happen. Another problem facing us is the cost. At the moment with one carer coping it is £14 per hour. We have had a few days when he needed two morning and evening. Because I employ this agency Direct Payments come into the mix. A financial assessment resulted in the Council agreeing to pay £1.43 per hour for every £14 I pay. It is very worrying how our quite comfortable circumstances will be affected long term. I have been very stressed since given this news last Thursday. Looking back from the D.C. Final followed by our Christmas and New Year cruise it seems so unreal. The fall down the stairs last January, the hospital stays in the Spring and summer and the gradual deterioration have certainly made this our annus horibilis. I can't even say that 2017 will be better as with this condition it won't. I don't want to depress anyone but you have always been so kind and caring both on here and when we've met you that I just wanted you to know what's been happening and if I'm not on here as much you will understand why. Being selfish I'm dreading the possibility of no more D.C. weekends especially away ones. Hoping it won't come to that and I can still attend home ties. I'm quite good at economising. Have had to do it in the past so will face what's to come hopefully. The crying is done in private.
I have often wondered how SG was doing, but didn't like to ask. My thoughts go out to you both.
Hugs Mo :grouphug::grouphug::grouphug:
Remeber we are all here for you and thinking of you! :hug::hug::hug:
Indeed I was thinking about you so much while typing I managed to tip half a mug of tea all over me, the settee and floor. Hope this image gives you a little chuckle! I'm off to get out of my sodden trousers!
Big Hugs Maureen! :grouphug::grouphug: Big Hugs to you also Alis!!!:grouphug::grouphug:
:grouphug: Supergran.
Sorry to hear things have got so bad. I noticed you haven't been about as much. Is SG getting attendance allowance to help fund the carers? Are there any other sources of help you can access?
Will be thinking of you both.
So sorry to hear your news SG. How quickly things can change - it really has been an annus horibilis for you. I'm so glad that you have reliable help now though - that must be a godsend. Attendance allowance to help offset costs is certainly a possibility or do they call it disability living allowance these days? It would certainly be worth looking into. Take care of yourself and remember to keep your sense of humour. Sending positive vibes your way!