Thinking of you SG :hug:
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Thinking of you SG :hug:
Sorry to hear this news SG but it's good to hear that you are getting positive help at last. Take care
Oh Maureen. My heart goes out to you both :grouphug: :grouphug: You know that your friends on the forum love & care for you both TAke care of your own health as well. Lots of love to you both.xxxx
Thinking of you both as you know.
Yes Attendance Allowance is a must. Apply for the higher rate which covers night as well as day. I'm sure he needs help to go to the loo in the night. And amazingly AA is not means tested.....just based on health needs so even a millionaire can claim!
My thoughts are with you both, Maureen. I hope that you can continue your breaks away, as you will need to have some time for yourself. As you know I am often awake on the other side of the pond, should you need to "talk" if you can't sleep. Look into the attendance allowance, it certainly seems that you should qualify for it. :flowers::hug:
Thinking of you, have been wondering how you were coping. Please apply for attendance allowance, it takes some of the pressure off. Take care of yourself as well, I found having a good cry really helped when I had the same experience with my mother.:hug::hug:
I too have been thinking of you and Alan, so thanks for bringing us up to date, although sad to hear of Alan's prognosis. I hadn't heard of that condition. I am so pleased that you are going to DC in Canada as that will do you a power of good and always remember that we are here for you.:grouphug:
I'm surprised you haven't been told about Attendance Allowance before, it was mentioned to me right at the beginning when Dave said he wanted to stay at home whatever happened.
Thanks to all of you expressing care and concern and thinking of us. We do get the higher rate of attendance allowance which we're thankful for but recently sg had a urinary infection and two carers were needed. At £56 per day for five days it was pretty expensive. We're now back to one thankfully. I don't want to dwell on the financial aspect, I mentioned it because of the low payment by Direct Payments which was a shock but as the Social Worker told me if you've worked hard and saved all your life then that's the result. Alan also goes to a day centre which is £24 per week and his respite when I was in Glasgow was over £400 which did involve a contribution from the Council. The point is that even with help the cost of care now and future care will be a drain. Yesterday was pretty horrific as he wanted to go to the toilet. I had difficulty getting him into the wheel chair and then couldn't manage to get him off so was too late. He was mortified and I was upset. Rang our carer and she came round. She was marvellous, cleaned him up, washed him and got him into his pyjamas eariy and did all necessary cleaning afterwards. Day to day life between care is difficult and often stressful but Alan seems to accept his condition and is always grateful. The sad thing is that he no longer reads, barely glances at the paper and even fell asleep during the England match. So very different from the man he used to be and it's only going to get worse which is heartbreaking.
Thinking of you, SG. Your last sentence is possibly the hardest part.......it's something we can never foresee.
:grouphug: