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banskogirl
29-05-2020, 19:10
Many thanks for your kind words. If I hadn't gone for the mammogram on the 12th March, I would never have known. As it's in my left breast and there is no lump. The woman, who did the mammogram, told me that it didn't look right and I had to inform my doctor immediately. On Tuesday, the consultant thought the cancer had spread to my lungs but couldn't give a diagnosis as to what is there. It couldn't have been very serious as, if anything had shown up on the CT scan, someone would have phoned me.


Thinking of you Stell x glad they caught it and you can start your treatment asap.

Big, big :grouphug:

Also a great reminder for us all to go for a mammogram when we get our letter!

Stell
31-05-2020, 07:14
My treatment has now been going for over a week. The first injection is on Thursday.

Another woman from the hospital phoned me, yesterday, saying they want me to have the Covid-19 test on Tuesday at Sandy Park (home of the Exeter Chiefs rugby union team). I told her, my car had been booked in for next Monday (tomorrow) and I had to pick it up on Tuesday. My sister, very kindly, told me that she'll pick me up and take me home and then take me back there on Tuesday otherwise I would have had to get on two buses each time. The woman then told me that if it wasn't convenient then someone would come to my house and do it on the doorstep. Someone will phone me to give me the time.

Stell
01-06-2020, 17:55
Nobody from the test people phoned me today and my sister let me down as well. My car's service has now been rebooked for next Tuesday.

banskogirl
01-06-2020, 19:25
Nobody from the test people phoned me today and my sister let me down as well. My car's service has now been rebooked for next Tuesday.

You really don't need this, Stell :crying: Are you supposed to go ahead to the hospital still?

Unfortunately sounds like a common story at the minute. Everything sounds good and then people are being let down when they need it most!

Stell
04-06-2020, 17:57
As I still hadn't had the test, I phoned the hospital yesterday. Another woman phoned me back and told me, if I didn't go there then my injection appointment would be cancelled. When I turned up, the nurse told me that it wasn't true. The injection would be going ahead, but I would have the test done literally before the injection. The injection went ahead, while my sister waited in her car for me. The next one is a blood test at the end of this month at my local doctor's surgery.

Stell
16-06-2020, 09:12
I stopped taking the tablets, last Friday, for one week. The injection seems to have worked, as the period was a no show.

Stell
17-06-2020, 12:47
A nurse from the hospital phoned me, yesterday, saying the hospital is trying to set up an acupuncture clinic and I should consider having it. My sister thinks it's a good idea for me.

goldfish
23-06-2020, 13:54
Sorry to hear your story Stell. Hope you are remaining positive and that you are not suffering adverse effects from your treatment. Good luck moving forward.

Stell
01-07-2020, 07:34
I had another blood test, yesterday. The nurse looked at the area, of where they did the biopsy, and didn't understand why the breast nurses want me to continue to have dressings on it as she claimed it looked clean and dry. But, she was worried about a scab being there. She agreed about me having the dressing.

Stell
02-07-2020, 17:34
I went back to the hospital, today. After having the injection, assessment and the ECG they gave me another two different boxes of tablets. One is Ibrance and the other is Letrozole. One is chemotherapy tablets, while the other is for hormones.

pabbers
07-07-2020, 09:22
Wishing you a good recovery Stell.

Stell
30-07-2020, 11:42
I had another blood test, yesterday. The oncologist's helper phoned me earlier to say, tomorrow's injection has been cancelled due to me having a low white blood cell count which means my immune system is no good. Though the chemo tablets finished last Thursday, she told me to take the last six tablets of Letrozole. I've got to have another blood test next Wednesday.

Stell
30-07-2020, 13:01
A nurse from the hospital has just phoned me to say they've made me an appointment for next Thursday for me to have a ECG, another injection and to pick up more tablets. But, it will depend on what the next blood test result shows.

Stell
07-08-2020, 09:04
I had to have a ECG test first, yesterday. But, the department didn't open until 2pm and I had to wait 20 minutes for them. Then, 15 minutes after they opened, another woman's name was called even though I was the first person there. The nurse, at the oncology department, thought I'd gone walkabout after I'd returned. She claimed she didn't realise they closed for lunch. I could only see the oncologist's helper for about a minute or so, as I was due to have the injection. She told me, my low white blood cell count was borderline and she would allow me to have the injection and more tablets (but the chemo ones would be a lower dosage). When I went there, for the injection, I got told that they had my name on their records but didn't understand why I was there. It had to be ordered. Three hours later, a nurse finally did it and also told me that it was the last one. I would now be having it once every three months. I've now got to have another blood test in two weeks time and go back to the hospital two days after it and have another ECG test and to see the oncologist's helper. Then, two weeks after that one, I've got to pick up more tablets.

Stell
22-08-2020, 11:37
A receptionist from my local doctor's surgery phoned me on Wednesday saying the doctor wanted me to have an injection next month. I found this to be very strange, as the nurse at the hospital had told me that I was now going to have it once every three months. On Thursday, my sister took me to the hospital and she decided to wait for me. I had the ECG done before going to the oncology department. I saw the oncologist's helper, who told me that there was nothing wrong with my heart. Also, the while blood cell count was still borderline. I told her about the phone call and she seemed to be mystified by it, as she'd written to the doctor saying the next injection will be in November. She then told me, the next one will be the blood test on the 1st of next month and she'll phone on the 3rd of next month. They'll send the tablets through the post, which delighted my sister. I then phoned the doctor's surgery. As I was talking to the receptionist, a nurse came and told me to leave as they were closing for the day. As I neared the exit, the receptionist told me that she had no idea what I was talking about and put the phone down. I tried to phone again, but my sister was waiting. When I did get the chance to phone them, they'd closed for the day. So, I sent them an email instead. Of course, I never received a reply.

Mickey
22-08-2020, 16:20
I can’t understand why your Dr. or surgery would get involved when you are under the care of an oncologist and team. I have never known this to happen. Your Dr will only get reports from the oncologist to keep them up to date, and that is it.

Stell
25-08-2020, 17:53
I'm afraid my local doctor's surgery are in a world of their own. I think the oncologist's helper believes she's obliged to keep him up to date, as he did refer me to him.

Mickey
25-08-2020, 18:01
Yes they have to keep them up to date, but the Dr does not do anything re treatment, that is up to the oncologist and his/her practice nurse.

Stell
02-09-2020, 09:15
I had another blood test, yesterday. Before she did it, the nurse gave me a date for the next injection. When I told her about the phone call, she had no idea who it could have been and also showed me the letter on her computer screen. It clearly said the next one must in November.

Stell
16-09-2020, 17:55
I received a Covid-19 test, yesterday, from the Imperial College London. They've said I've got to do it with one of my fingers and then give them the result via their website. This will be the third time I've had the test.

Stell
17-09-2020, 17:48
I did the test, today, and the result came back negative.

clancy
17-09-2020, 21:02
12 months since my fall on holiday in Corfu so I've stayed put today and avoided steps! Some of you may remember my posts; it resulted in a 2 week stay in Greek clinic (tied to the bed) - lovely staff but virtually no English spoken - a trip home in an air ambulance, and then 2 weeks in hospital here. Not something I want to repeat! Been a funny old year for all of us but we're still here cheering Andy on! Keep safe everyone. xx

Stell
01-10-2020, 17:43
I had another blood test on Tuesday, but I won't receive the phone call until the 29th of this month after the next blood test.

Today, I received a letter from the hospital saying the oncologist had made me an appointment for next Tuesday for me to have a CT scan. But, the envelope looked like someone had ripped it open, had a look at my letter and then put the letter back into the envelope. I've sent a complaint to the Royal Mail.

Stell
15-10-2020, 10:08
The Royal Mail, eventually, apologised for my letter being ripped open.

I received a Covid-19 test, last Thursday. But, I then found out that I would have to drive to Budleigh Salterton to post it. I didn't think it was worth me driving about 12 or 13 miles just to post something. So, last Saturday, I booked a test at my local park and ride. The result, which came back on Tuesday, was negative.

clancy
15-10-2020, 13:21
Glad your result was negative, Stell. My grand-daughter Alice tested positive on her 23rd birthday; she is a teacher at a local school for handicapped children where one of the staff tested positive, now Alice, and possibly more. The school is now closed for 2 weeks. My son and his wife have tested negative.

patlowe
15-10-2020, 15:59
Thinking about you all. Stay safe. :flowers:

Rosalind
16-10-2020, 13:31
also came on here to say keep safe all. I hope you are all doing ok in these weird times.

Teresa
17-10-2020, 14:09
Haven’t been on much. During Covid both knees and my left hip have decided to resign from service. Need 3 operations in fairly rapid succession. Having to remember how to use crutches.....!!!

Hoping to have the first knee op by Christmas. Good thing DC has gone by the wayside.

clancy
17-10-2020, 16:12
Have been missing your posts. I too am glad I managed to get some DC in when I did.
Hope they get you sorted quickly and you're back jumping over 5 bar gates come next year!
Take care. x

Mickey
17-10-2020, 16:14
Sorry to hear you’re having such a tough time. Hopefully you will have your first knee operation sooner than later. You will be in my thoughts and prayers.

Stell
19-10-2020, 17:52
I received a letter, today, from the hospital. They've made me an appointment to see the oncologist next Thursday.

Stell
27-10-2020, 11:20
I had another blood test today. The nurse didn't understand why I have to take the chemo tablets for three weeks and stop for one week before starting them again. I remember, when I saw the oncologist a few months ago, he claimed there was madness in his method and he hoped it would work.

Mickey
27-10-2020, 12:13
I had another blood test today. The nurse didn't understand why I have to take the chemo tablets for three weeks and stop for one week before starting them again. I remember, when I saw the oncologist a few months ago, he claimed there was madness in his method and he hoped it would work.

This is common practice, the nurse should know better you have to have the blood test to make sure your blood count is not too low, if it is alright then
You can take the pills for another 3 week

Stell
29-10-2020, 10:45
I received a text message, yesterday, from my doctor's surgery saying they'd cancelled my injection appointment for next Friday. When I phoned them, the receptionist claimed their staff are sick, but re-booked it for the following Monday (9th).

Stell
09-11-2020, 09:19
I went for my injection, this morning. The nurse told me, she wasn't qualified to do it and had to get one of the doctors to do it instead. I told them, the nurse at the hospital usually put the cream on and then waited for 20 minutes before doing the injection. I was told, they didn't have the cream nor could wait 20 minutes. At the end, I was told to have the next one done around about Valentine's Day with a doctor.

banskogirl
09-11-2020, 19:14
I went for my injection, this morning. The nurse told me, she wasn't qualified to do it and had to get one of the doctors to do it instead. I told them, the nurse at the hospital usually put the cream on and then waited for 20 minutes before doing the injection. I was told, they didn't have the cream nor could wait 20 minutes. At the end, I was told to have the next one done around about Valentine's Day with a doctor.

Oh dear Stell, not very well organised! Do you mean the Emla cream, my brother gets this for numbing his arm for jabs and also for freezing his foot before they use a freeze spray for a callous. It's usually easy to get from the chemist.

Stell
12-11-2020, 18:45
I just know it's a cream that numbs the area around my womb. The nurses at the hospital used it.

I received the very short notice, from the hospital on Wednesday, that I'd got an appointment for Thursday (yesterday). Luckily, my sister was able to take me there. When I arrived, I got asked why I was there. I then had a scan on my left ovary. The consultant then told me, the ovary hadn't shrunk. Instead, it had grown but he wasn't worried about it. He claimed it was normal for a woman to be suddenly be put onto hormone treatment, while the periods were still going. As I haven't had one, since starting the treatment, they weren't going investigate it any further. He told me, I would have to have a scan every six months.

Teresa
19-11-2020, 09:52
Well have a date - COVID permitting for the first op I need. Going in on the 1st Dec for a knee replacement. Was rung on Tuesday. The days are going like the wind. Have to isolate after the COVID Test 3 days before, but have decided to stop going anywhere other than the hospital and park from tomorrow. Going to drive me spare.

Jan
19-11-2020, 10:26
Well have a date - COVID permitting for the first op I need. Going in on the 1st Dec for a knee replacement. Was rung on Tuesday. The days are going like the wind. Have to isolate after the COVID Test 3 days before, but have decided to stop going anywhere other than the hospital and park from tomorrow. Going to drive me spare.

That's good news Teresa. Hope nothing gets in the way of it happening. It might be tough in the meantime, but really worth it in the long run. Find some good tennis to watch - Andy archives will fill hours and not be stressful if you choose carefully!!

clancy
19-11-2020, 10:51
Good luck Teresa - soon be jumping over 5 bar gates again! xx

patlowe
19-11-2020, 12:53
Will be thinking about you Teresa. Glad there is some progress there for you. All the best. :flowers::hug:

Mickey
19-11-2020, 14:45
:cheer::flowers::maggie:Will be thinking of you Teresa, hopefully you will have the op on the 1st. Keep safe.

Genbrit
19-11-2020, 15:36
Good news Teresa. Keeping fingers crossed it all works out. Knee replacement has worked out well for my husband. Had his 2 years ago. He just had a hand operation that was delayed from May, due to Covid. It was a minor day op but its giving him more problems than the knee replacement. Go figure!!

anor
19-11-2020, 17:50
Glad to hear that you've got a date Teresa and a sensible decision to keep safe until then. I hope it all works out well for you.

Stell
26-11-2020, 18:37
I had another blood test on Tuesday. Today, I got told that I'd got a low white blood cell count again. So, no tablets. Instead, I've got to another blood test next Wednesday. I'll be told the result next Thursday. I will then get more tablets, but it will depend on the result. If it hasn't improved, then the oncologist will have a rethink.

Jan
01-12-2020, 18:30
Teresa, hope there was no delay and that you had your op today!
All the best for your recovery :flowers:

Teresa
02-12-2020, 17:07
Had the op. They weren’t kidding when they said it was more painful than hips. Have got out of bed today and hobbled a few steps. All I want to do at the moment is sleep.

Thanks for the good wishes.

Sallydaisy
02-12-2020, 18:49
Had the op. They weren’t kidding when they said it was more painful than hips. Have got out of bed today and hobbled a few steps. All I want to do at the moment is sleep.

Thanks for the good wishes.
Good to hear you've had it done ... just give it time, there's a lot of bruising and sawn bone to heal (not the case with a hip replacement) so whatever you do - keep taking the painkillers!!! You'll need them so you can cope with the vital physiotherapy and once you get moving and the bruising eases you can ease off the drugs (took me about 2 months) and realise just how much better that new knee is!!!

NB: take maximum dosage of paracetamol and ibuprofen BEFORE they take out the clips ...
:hide:

Mickey
02-12-2020, 18:50
Pleased the op is over, having had a knee replacement I know how painful it is, mainly because 2 joints are involved. Hope all goes well during your rehab.
Will be thinking about you.

Teresa
03-12-2020, 11:15
Thanks. Working hard on getting it moving. Taking the painkillers. Think I am reaping the benefits of all the pre-op exercises I did.

Managed to hobble to the loo this morning, which was great progress.

Stell
03-12-2020, 13:06
I received a phone call, yesterday, from the hospital after having my blood test. I was told that my white blood cell count was back to normal and to pick up my tablets from Boots on High Street. When I got there, the female employee claimed that they'd got no record of my tablets and to go back next week. As I hadn't had any chemo tablets for two weeks and no hormone tablets for one week, I got her to phone the hospital. She then told me, the tablets would be ready this afternoon and to go back and pick them up. Another female employee told me to make a complaint to the hospital, as I'm a vulnerable patient and shouldn't be sent on wild goose chases.

Jan
03-12-2020, 13:23
Thanks. Working hard on getting it moving. Taking the painkillers. Think I am reaping the benefits of all the pre-op exercises I did.

Managed to hobble to the loo this morning, which was great progress.
Well done!!

Teresa
07-12-2020, 19:39
Well I am home now. My friend has gone home today so it’s just me and the cat. The cat decided to bring me a live mouse by way of a welcome home present. I can usually deal with them. Just not on a walking frame. Little toad.

clancy
08-12-2020, 10:14
Bet you're pleased to be home. If a cat had brought me a live mouse, I'd have been back in hospital with a heart attack! Take it easy. x

Teresa
09-12-2020, 16:14
Bet you're pleased to be home. If a cat had brought me a live mouse, I'd have been back in hospital with a heart attack! Take it easy. x

My previous cat was the Andy Murray, Roger Federer, Raphael Nadal and Novak Djokovic of mousing. Some days we had two or three. I had to master the art of dealing with them.��

pabbers
11-12-2020, 20:20
Glad you're home Teresa. No place like it. Take care.

cazza99
12-12-2020, 17:16
Glad the op went well and you are now back at home Teresa :)

Stell
30-12-2020, 18:58
I had another blood test, yesterday, and a nurse from the hospital phoned me today to say my white blood cell count was just below the borderline. So, I've got have another blood test on the 5th January, which is my dad's birthday. Also, I can't make an appointment for my injection in February until I walk into my doctor's surgery for the blood test.

Stell
07-01-2021, 10:33
I went for my blood test, on Tuesday, and was told by the receptionist that my doctor would have to phone me to make the appointment for my injection. I'm still waiting for the phone call. Yesterday, the same nurse from the hospital phoned me to say my white blood cell count was back to normal. She agreed that I should now pick up my tablets from Boots at the hospital. She then told me, the oncologist will be phoning me on the 21st of this month.

Stell
22-01-2021, 08:27
The oncologist's helper phoned me, on Tuesday. She told me to have the next blood test on the 2nd of next month and then to come in on the 4th of next month for a review. She wasn't pleased, when I told her, I still hadn't got an appointment for next month's injection. She told me, the oncologist would be writing to my doctor's surgery. It seemed to do the trick, as my doctor phoned me yesterday and gave me an appointment for the 5th of next month. He told me, they will let me know as to when I'll be having the vaccine as I told him, I'm supposed to have it by the middle of next month. As my dad continues to get worse with his Alzheimer's disease, and is due to have his vaccine tomorrow, my doctor told me that I'll be able to walk in with him.

banskogirl
23-01-2021, 18:51
The oncologist's helper phoned me, on Tuesday. She told me to have the next blood test on the 2nd of next month and then to come in on the 4th of next month for a review. She wasn't pleased, when I told her, I still hadn't got an appointment for next month's injection. She told me, the oncologist would be writing to my doctor's surgery. It seemed to do the trick, as my doctor phoned me yesterday and gave me an appointment for the 5th of next month. He told me, they will let me know as to when I'll be having the vaccine as I told him, I'm supposed to have it by the middle of next month. As my dad continues to get worse with his Alzheimer's disease, and is due to have his vaccine tomorrow, my doctor told me that I'll be able to walk in with him.

Good to hear that you can go with your Dad. Be careful though :grouphug:

Stell
02-02-2021, 18:47
I went for another blood test, this morning. I told the nurse that I was still waiting for the vaccine. My mum was supposed to have had hers, last Wednesday, but she wanted to have it at the same time as me. I also told the nurse that I'm classed as vulnerable. Later, the receptionist rang to say they were offering me an appointment for Saturday for me to have the vaccine. She agreed for my mum to have it done at the same time.

Stell
21-02-2021, 09:24
I received a letter, on Friday, from the hospital. They'd made me an appointment for me to have a scan on the 8th of next month. I know the last scan showed the cancer was slowly going and the oncologist had hoped to start lowering my tablet dosage. But, he couldn't because the next two blood tests after it weren't very encouraging. He's probably hoping to start to lower the dosage if the cancer is still going.

goldfish
21-02-2021, 22:44
Hope things go better for you Stell. Seems to have been complicated and a bit confused.

Stell
11-03-2021, 09:36
I had the scan on Monday, but I'll probably won't get to know the result until about Easter. The oncologist has already given me different chemo tablets, which I believe are a lower dosage.

Stell
12-03-2021, 09:39
Today is the first anniversary of me going to the Sainsbury's car park and having my mammogram.

banskogirl
14-03-2021, 20:19
Today is the first anniversary of me going to the Sainsbury's car park and having my mammogram.

:grouphug: definitely good that you went xx

pabbers
17-03-2021, 13:51
Fingers crossed for the result Stell.

Stell
31-03-2021, 07:29
I had my latest blood test, yesterday, and should get the result tomorrow.

Stell
02-04-2021, 08:36
A nurse from the hospital phoned me, yesterday, and told me that my white blood cell count was just above the normal level. But, the oncologist was slightly worried about my magnesium. The oncologist had decided to let it go and would allow me to carry on with the tablets. As tomorrow (today) is Good Friday, someone would pick up the tablets for me and I would have to collect them from the same department where I used to have the injections. Just before I left, earlier, the same nurse phoned. She apologised by saying Boots had mixed up my tablets and I would have to phone them (Boots) tomorrow. I told her, she didn't have to apologise for that useless lot as they're always messing me around. Luckily, in the future, I'll be going to Boots on the High Street as they are more reliable.

Stell
17-04-2021, 11:37
I've got to book my next blood test, next week, for the 27th of this month. My mum told me, my face is looking a bit yellow.

jeannie13
18-04-2021, 12:59
some of you have met my sister Isla. She passed away on Friday morning.

Sallydaisy
18-04-2021, 13:03
some of you have met my sister Isla. She passed away on Friday morning.
:grouphug:
Oh Jeannie, I'm so sorry to hear that news. I remember Isla well.
Thinking of you at this very difficult time.
:flowers:

JAMES4578
18-04-2021, 13:27
Sorry to hear the sad news on Isla Jeannie, take care. :grouphug:

Jan
18-04-2021, 14:09
My condolences Jeannie :flowers:

Teresa
18-04-2021, 14:58
So sorry to hear that. My thoughts are with you.

supergran
18-04-2021, 16:23
Dear Jean, am so very sorry to hear of the death of Isla. I remember her very well at Davis Cup ties. Sending my sincere condolences to you and her family. Tried to phone you but you've obviously changed your phone number. Thinking of you at this very sad time. XX

RosieBear
18-04-2021, 16:39
I met Isla at Davis Cup, Jeannie. She was a fun and memorable lady. I'm very sorry to learn she has passed away. My deepest condolences xxx

anor
18-04-2021, 18:04
I too remember meeting Isla at Davis Cup in Glasgow. I'm very sorry to hear of her passing, Jeannie and am thinking of you at this sad time.

cazza99
18-04-2021, 18:56
:grouphug: Sorry to hear this Jeannie

banskogirl
18-04-2021, 21:17
Aw Jeannie thinking of you at this sad time. I am really sorry xx

Mickey
19-04-2021, 05:42
So sorry to hear your news. May she rest in peace.

RoastLamb
19-04-2021, 21:12
Jeannie, so sorry to hear about your sister Isla. Sending you hugs and :flowers:

Stell
21-04-2021, 08:49
The oncologist phoned me, unexpectedly, earlier. She told me, she'd taken over from my other oncologist who had now retired. She then told me, the scan result was good news. The cancer is still slowly going and stabilising. So, I just have to carry on with the same treatment.

themass15
21-04-2021, 09:04
So pleased for you Stell

JAMES4578
21-04-2021, 09:55
That is good news Stell, will be encouraging.

goldfish
21-04-2021, 12:02
Encouraging news Stell

banskogirl
21-04-2021, 18:41
Great news Stell! Really pleased for you :) will keep praying!

jeannie13
22-04-2021, 13:59
Thanks to all the nice people that sent lovely messages to me about my sister Isla.

She enjoyed coming to some of the events in Glasgow and the final in Belgium

She will be sadly missed.

Stell
22-04-2021, 17:56
Many thanks for your best wishes. I received a letter from the hospital, today, saying I've been made an appointment for the 26th of next month to meet the new oncologist. But, I've got to have the blood test the day before (if next Tuesday's blood test comes back okay).

patlowe
22-04-2021, 22:32
some of you have met my sister Isla. She passed away on Friday morning.

I'm so very sorry to read this, Jeannie. Sending you my love and sympathy. :hug:

Stell
28-04-2021, 08:13
I had another blood test, yesterday. The male nurse told me, I wasn't supposed to have one as he claimed my next one was due on the 25th of next month!! I had to put him right, as I told him, I have to have a blood test every month after my chemo tablets have finished.

Stell
29-04-2021, 10:30
Yesterday was the first anniversary of my diagnosis.

banskogirl
29-04-2021, 20:54
Yesterday was the first anniversary of my diagnosis.

:grouphug: I am sure it was a great shock?

Stell
30-04-2021, 09:27
It came as a bit of a shock after the doctor told me, she had believed it might be breast cancer beforehand but she didn't know how far it had gone. Luckily, for me, on the 28th April last year, I was told that it was stage two. It meant it wasn't like Olivia Newton John or Sarah Harding, as it hadn't spread to any other part of my body. Fingers crossed that it keeps going and doesn't start to spread.

banskogirl
30-04-2021, 18:56
It came as a bit of a shock after the doctor told me, she had believed it might be breast cancer beforehand but she didn't know how far it had gone. Luckily, for me, on the 28th April last year, I was told that it was stage two. It meant it wasn't like Olivia Newton John or Sarah Harding, as it hadn't spread to any other part of my body. Fingers crossed that it keeps going and doesn't start to spread.

You have been very brave, and I hope it has helped by being able to share the steps with us.

Stell
01-05-2021, 09:34
It has. I've just come back after having my second vaccine. I used to share it with one of my cousins, on my mum's side, but she died of the Covid-19 virus just before last Christmas. I've now heard she'll be one of the thousands of people who'll have the memorial in St Paul's Cathedral dedicated to her.

banskogirl
01-05-2021, 15:15
It has. I've just come back after having my second vaccine. I used to share it with one of my cousins, on my mum's side, but she died of the Covid-19 virus just before last Christmas. I've now heard she'll be one of the thousands of people who'll have the memorial in St Paul's Cathedral dedicated to her.

That's nice for your family to know she will be remembered this way, it will be for an awful lot of people :sad: glad you had your second vaccine, my brother had his on Thursday past so now I'm ready to take him to a coffee shop, when the mad rush calms down here!

Stell
26-05-2021, 07:12
I had another blood test, yesterday, and I'll be seeing the new oncologist later today. I only got told, last month, that my usual oncologist had retired even though I hadn't seen him for a year.

Stell
26-05-2021, 17:46
I saw the new oncologist, earlier, and she was very pleased with my progress. She wants to see me again in July.

Stell
08-06-2021, 10:18
I received a letter, last Saturday, from the oncologist saying she wanted to start my other treatment as soon as possible. It involves strengthening my bones and getting rid of any cancer that might be there.

banskogirl
14-06-2021, 16:50
I received a letter, last Saturday, from the oncologist saying she wanted to start my other treatment as soon as possible. It involves strengthening my bones and getting rid of any cancer that might be there.

This is great news Stell :hug:

Stell
19-06-2021, 10:58
A policeman turned up claiming he wanted to talk to me about my dad's behaviour with his next door neighbours. They already knew about my dad's condition and know that he's slowly going downhill, but the policeman claimed that his next door neighbours are scared of my dad and what he might do to them.

clancy
19-06-2021, 15:46
What a worry for you Stell. x

Stell
23-06-2021, 07:57
I phoned my dad's doctor, last Friday, and all he could do was to get someone to help my dad (but my dad would have to pay for it) or to get a volunteer who would occasionally help my dad. The policeman believed the doctor could do more than that. So, I talked to my sister last Sunday and she believed our dad's tablets might have to be looked at again. I sent an email to the doctor, on Monday, but still haven't heard anything. I know the police would have spoken to the doctor, so I'm going to try and phone him.

I had another blood test, yesterday morning. Yesterday afternoon, a nurse phoned to say everything was fine and to pick up my tablets today. I've just had another phone call from the hospital saying I'm a bit anaemic and to have another blood test next Monday and they'll phone next Wednesday.

goldfish
23-06-2021, 19:18
Goodness Stell, they do mess you around. Hope you can get your dad sorted - a worry for you.

Stell
02-07-2021, 08:39
My dad's doctor did tell me, in the end, he would be writing to the mental health people and get my dad re-assessed.

I had another blood test on Monday. As nobody phoned me, on Wednesday, I phoned the hospital yesterday. I got their answering machine, as usual, but a nurse phoned me back almost straight away. She knew nothing about the blood test as they were changing their system. She gave me another phone number to call. I did and got their answering machine. My sister and brother-in-law came over, during yesterday afternoon, as I'd agreed to look after their dog while they went somewhere. After they'd come back and picked the dog up, I decided to phone Boots at the hospital. I'd been told, in the past, if I didn't hear from them then just go and pick up my next lot of tablets. Unfortunately, the male employee at Boots (who knows me) told me that there was no prescription with my name on it and he was very worried about me. He told me to go back to them. I did and got their answering machine again. Earlier, I phoned my doctor's surgery and tried to book the appointment for next month's injection. The receptionist told me, they were only taking bookings for up to the end of this month. I told her about what happened yesterday and she was also worried about me. She got my doctor to phone me, which he did. He told me, he would do the tablets if he was allowed too. But, he'd got no instruction from the hospital to do it. He told me to phone back the oncology people and badger them into what is going on. As he was also worried about me. I told him, the man at Boots didn't want whats left of my cancer to start coming back and also he didn't want my periods to come back after not having them for a year. I phoned the oncology department and their receptionist will get someone to phone me.

Stell
02-07-2021, 09:15
Finally sorted. A nurse from the oncology phoned back and told me that there was no problem with my blood test result and the nurse, who phoned me yesterday, should never have given me a different number. Also, the oncologist was in the process of doing my prescription when something happened and she forgot about it. She then told me another nurse would phone me, which she did. She apologised and has made it her challenge for me to have no more stress related problems with them. I've got to pick up my tablets this afternoon.

banskogirl
02-07-2021, 10:43
Glad someone is helping you now! Hopefully they will be true to their word and you will have less hassle :flowers: really good news about the test result too x

Stell
13-07-2021, 11:51
A woman from the mental health team phoned me, last Thursday, about my dad. She promised to phone back, which she never did. Last Friday, a man from the mental health team phoned me to say they would like to come to my house but he couldn't give me an appointment.

The oncologist phoned me, earlier, and I told her about the phone calls from the mental health people. She wasn't impressed. She then got a bit angry at my doctor's surgery after I told her that they're not co-operating on giving me an appointment for my next injection which is during the first week of next month. She told me, she'll write to them. I then told her about last year's flu vaccine and she told me, she wants me to have it this year as well. She then proceeded to tell me that she would like the next lot of treatment to start in November. The treatment would be for me to go to the hospital and have an injection into my bones, which would strengthen them. But, as there could be a side effect to my jaw, she wants me to go to the dentist first.

Mickey
14-07-2021, 05:19
The injection to strengthen your bones is given once a month into your stomach and not into your bones, it is a very small needle and you don’t feel anything. This is normal practice for part of breast cancer treatment.

Stell
17-07-2021, 07:49
She didn't tell me that, Mickey, and she's the oncologist!!

I received three letters, yesterday. One was a copy of the letter which the oncologist had sent to my doctor's receptionist complaining about them not co-operating on my usual injection which is due next month. The second was an appointment for the oncologist to phone me on 19th October. The third was for me to go to the hospital on the 2nd of next month for an injection and a scan. Why they had to put the letters into separate envelopes is a mystery, as I would have put them all in one envelope.

Mickey
17-07-2021, 14:13
Sorry I think you might find I’m right, but …..

RoastLamb
17-07-2021, 15:27
Yeah I mean who knows? I am finding out that b-c treatment seems to be a lot different in the UK than it is in my country of Canada. Good luck, Stell no matter what. I feel for you x

Stell
20-07-2021, 10:33
Finally got my usual three month injection booked for the 9th of next month at my doctor's surgery. November's one will be at the hospital

Stell
26-07-2021, 17:42
The mental health people didn't turn up, last Thursday, as someone's car broke down. They'll be coming next Friday.

I had another blood test, today. I went to the hospital and went to where they do it, only to be told I had to go to the renal part of the hospital. It was a very long walk. But, when I got there, I was checked in and told to sit and wait. The receptionist then told me, I was in the wrong place and told to go back. I did and had no problem. I should get the result tomorrow.

Stell
02-08-2021, 17:47
When I arrived at the hospital today, to have my scan, I was told that my name was on the waiting list for a CT scan. But, as I was there, I'd been squeezed in to save me having to go back. The oncologist is supposed to be phoning me on the 19th October with both results.

clancy
02-08-2021, 18:17
19th October??

Stell
06-08-2021, 17:47
That's what my sister said, clancy. It's normal for the scan result, but, the oncologist will know the CT scan result before the end of this month.

The mental health people turned up today. They reassessed my dad and were worried about me. They believed I need more support, but could only offer to send me leaflets and recommend my dad's doctor to give him another tablet to take on top of the other three tablets.

Stell
13-08-2021, 11:04
A man from the mental health people phoned me, yesterday, to say my dad's prescription was on the way. But, he can't start taking the extra tablet until next Friday. They want to see how he's getting on, on the 13th of next month.

Stell
21-08-2021, 09:18
My dad's prescription turned up on Wednesday and he was able to get the extra tablets on Thursday. He started taking them yesterday.

I received a letter from the oncologist, earlier, saying the CT scan result had shown the cancer is still slowly going. She would like to continue with the same treatment.

Stell
25-08-2021, 18:03
I had another blood test, on Monday. Yesterday, a nurse from the hospital phoned me to say I'd got borderline anaemia. She then told me, I would have to have another blood test and would I be having it later. I told her, I would be having it tomorrow. I arrived at the hospital, so early today, that I was the first person. When I walked into the room, the nurse claimed my name wasn't on her computer. She refused to phone the Cherrybrook department, where I used to have my injections. So, I went there and told the receptionist. She went to find out why. She came back and told me, my name was now on the computer. I went back and waited outside. A nurse came along and claimed she was from the Cherrybrook and was looking for me. She told me, she believed there would be nothing wrong with my blood test result. She was right, as a nurse phoned me to say I'll be able to pick my tablets up tomorrow.

banskogirl
25-08-2021, 18:44
I had another blood test, on Monday. Yesterday, a nurse from the hospital phoned me to say I'd got borderline anaemia. She then told me, I would have to have another blood test and would I be having it later. I told her, I would be having it tomorrow. I arrived at the hospital, so early today, that I was the first person. When I walked into the room, the nurse claimed my name wasn't on her computer. She refused to phone the Cherrybrook department, where I used to have my injections. So, I went there and told the receptionist. She went to find out why. She came back and told me, my name was now on the computer. I went back and waited outside. A nurse came along and claimed she was from the Cherrybrook and was looking for me. She told me, she believed there would be nothing wrong with my blood test result. She was right, as a nurse phoned me to say I'll be able to pick my tablets up tomorrow.

That's great news Stell but what a palaver!

Stell
01-09-2021, 17:43
I know I'll be having my booster vaccine at some point, which the government announced today.

lovetennis
13-09-2021, 21:11
Not been on the forum much despite all the USO excitement as unfortunately I have Covid at the moment. A 'breakthrough' case as I a double vaxxed. Been rubbish for the last 5 days but seem on the up now. Hope everyone e else is keeping well. Hubby so far is negative so that's good

banskogirl
13-09-2021, 21:38
Not been on the forum much despite all the USO excitement as unfortunately I have Covid at the moment. A 'breakthrough' case as I a double vaxxed. Been rubbish for the last 5 days but seem on the up now. Hope everyone e else is keeping well. Hubby so far is negative so that's good

Sorry to hear you aren't too well :( just to make you feel better, there is no difference among the people over here whether they're double vaxxed or not. At least 4 of my close friends had covid over the summer, all double vaxxed and all healthy and it hit like flu. They're all fine now. Also one is a mummy who passed it on to her baby, who had not been out of the house and could only have got it from the mummy. I'm not saying all this to scare, rather to show they are all well now :) hoping you feel better very soon :flowers:

RosieBear
14-09-2021, 06:53
Get well soon lovetennis :hug::flowers:

lovetennis
14-09-2021, 07:22
Sorry to hear you aren't too well :( just to make you feel better, there is no difference among the people over here whether they're double vaxxed or not. At least 4 of my close friends had covid over the summer, all double vaxxed and all healthy and it hit like flu. They're all fine now. Also one is a mummy who passed it on to her baby, who had not been out of the house and could only have got it from the mummy. I'm not saying all this to scare, rather to show they are all well now :) hoping you feel better very soon :flowers:

Thanks for the good wishes & reassurance. It is very flu-like but also some weird symptoms like a strange smell in my nostrils for 24 hours. No cough or chest problems which is good. Feeling a bit more human this morning so hope I will be well enough to start working from home again tomorrow

Teresa
14-09-2021, 08:52
@lovetennis - glad you are on the mend.

I have also been a bit distracted. I was offered a late cancellation, and so providing my COVID Test is negative will be having my Hip Revision Operation on Thursday. Only heard on Friday. So things manic here. The dog went off Saturday.

Very relieved, but it’s still a bit scary.

anor
14-09-2021, 10:19
Glad you are starting to feel better, lovetennis. :flowers:
Good luck with the op, Teresa. :grouphug:

patlowe
14-09-2021, 18:44
Will be thinking about you Teresa. :flowers::hug:

patlowe
14-09-2021, 18:48
Thanks for the good wishes & reassurance. It is very flu-like but also some weird symptoms like a strange smell in my nostrils for 24 hours. No cough or chest problems which is good. Feeling a bit more human this morning so hope I will be well enough to start working from home again tomorrow
Don't be in a hurry to go back to work, Kath. Make sure you are properly well first. :flowers:

Jan
14-09-2021, 20:25
Hope you soon feel back to normal lovetennis.

All the best with your op Teresa!

cazza99
14-09-2021, 21:26
Good luck with your op Teresa.

Hope you are feeling a lot better lovetennis.

JAMES4578
15-09-2021, 17:33
Sorry to hear you were ill Kath, glad you are a bit better now though! Unfortunately being double jabbed does not necessarily prevent you getting covid , however the risk of serious illness is significantly reduced in those that do catch it.

All the best with your operation Teresa!

Sallydaisy
15-09-2021, 18:04
@lovetennis - glad you are on the mend.

I have also been a bit distracted. I was offered a late cancellation, and so providing my COVID Test is negative will be having my Hip Revision Operation on Thursday. Only heard on Friday. So things manic here. The dog went off Saturday.

Very relieved, but it’s still a bit scary.
Good Luck for tomorrow Theresa!
:flowers:

Sallydaisy
15-09-2021, 18:04
Not been on the forum much despite all the USO excitement as unfortunately I have Covid at the moment. A 'breakthrough' case as I a double vaxxed. Been rubbish for the last 5 days but seem on the up now. Hope everyone e else is keeping well. Hubby so far is negative so that's good
Good to know you are on the mend!!! Fingers crossed for Steve ...
:peace:

Stell
16-09-2021, 08:56
While I was away, last week, I received a text message from the receptionist at my doctor's surgery saying my flu vaccine appointment for next Saturday (this Saturday) had been cancelled. Then, on Monday, I received another one from her saying I had to re-book my flu vaccine appointment. I did wonder if she knew about my blood test being next Monday and a nurse from the hospital will be phoning me next Tuesday.

A man from the mental health team turned up, on Monday, to see how my dad was getting on with taking the extra tablet. My dad believed he was the same, but I know he has gone downhill again. He told my dad to keep taking the extra tablet. I told the man that I'd met a woman, while I was away, from Mind. She was prepared to sit down and listen about my health problems and problems with my dad. The man, from the mental health team, wasn't interested. He told me, I should drive my dad to anywhere he likes even when the chemo tablets finish and I'm due the blood test. He claimed he couldn't care less if I got leukemia or the treatment suddenly stopped working. He then told me, he wouldn't be coming back, which pleased me.

Teresa
18-09-2021, 11:35
Well got through the op. After almost passing out standing up yesterday, (typical Hughes attention seeking), I have managed a few steps today.

This op is brutal.

@Stell I would complain to the man’s boss. That’s appalling.

anor
18-09-2021, 12:35
Good to hear, Teresa, you're such a trooper!

Jan
18-09-2021, 20:26
Take care Teresa, don't overdo it! Glad you are on the road to recovery.

patlowe
19-09-2021, 11:31
Glad you are now on the other side of the Op, Teresa. I hope you have a speedy recovery and will soon feel the benefits after all you have gone thru. :flowers:

Stell
22-09-2021, 09:02
I had another blood test, on Monday. Again, the nurse didn't have my name on her computer. So, I had to go to the Cherrybrook department and get their receptionist to put my name onto the nurse's list. The receptionist got my name completely wrong and had to come back and ask me for my address, which she had to write down. Eventually, she told me that my name was there and I had it done. Yesterday, a nurse from the hospital phoned me to say I'd still got a slightly low white blood cell count. But, the oncologist wasn't too worried about it. So, I'll be picking up my tablets later today. Next month, the oncologist will phone me with the scan result and with next month's blood test result and her plan for my next treatment which she wants to start in November.

Stell
08-10-2021, 17:44
I heard, today, about 40 million people will now be eligible for a flu vaccine this year. I've already had mine, I had it earlier this month.

Stell
20-10-2021, 07:43
I had my blood test on Monday. Yesterday, my oncologist phoned me to say it was fine. She then told me, the scan from August was fine as well. She'd already put my name down for another scan. She was delighted when I told her, I'd already had my flu vaccine. But, she wasn't pleased when I told her that I'm still waiting for my booster vaccine. She told me, she would be writing to my doctor's receptionist about it.

Stell
06-11-2021, 10:35
I received a letter from the hospital, on Thursday, saying all future blood tests will now have to be done at my doctor's surgery. I went there, yesterday, and the receptionist told me that they couldn't do it until the 19th of this month which is too late for me. So, I phoned the number on the letter and the receptionist sound exasperated by what had happened and booked me in at Whipton Hospital instead.

I've also booked my booster vaccine and also my parents booster vaccines for the 17th of this month in Exwick.

Stell
17-11-2021, 18:39
I had my blood test done on Monday. Yesterday, a nurse from the hospital phoned me to say I would be able to pick up my tablets. I picked them up, earlier today, and then I had my booster vaccine.

banskogirl
24-11-2021, 23:59
I am now off work with covid. I had my flu jab last Thursday and then didn’t feel great from Saturday. Thought it was just the jab. Really glad I said no to a covid booster on the same day, that’s all my body would’ve needed :rolling:

clancy
25-11-2021, 05:35
Take care. x

anor
25-11-2021, 09:31
Sorry to hear that, Banskogirl. Hope you feel better soon. :hug:

RosieBear
25-11-2021, 10:30
Aww, get well soon Banskogirl :flowers::hug: xx

Genbrit
25-11-2021, 18:39
Take care Banskogirl. Get well soon.

JAMES4578
25-11-2021, 18:46
Hopefully better soon Bansgogirl, take care! I had my covid Booster and flu jab on the same day with little issue,other than bit of fatigue and sore arm.

cazza99
25-11-2021, 21:57
Hope you feel better soon. :grouphug:

Stell
14-12-2021, 18:41
I saw my oncologist, earlier today. She was delighted with my progress and believed the chemo tablets are still working. But, she wasn't pleased that my Zoladex injection was cancelled last month. As I'd been to see the dentist, my next lot of treatment will be going ahead in early January and also I'll be having the cancelled injection at the same time. She told me, she's worried about me regarding my dad as he continues to decline.

patlowe
15-12-2021, 18:46
I am now off work with covid. I had my flu jab last Thursday and then didn’t feel great from Saturday. Thought it was just the jab. Really glad I said no to a covid booster on the same day, that’s all my body would’ve needed :rolling:

Oh I'm sorry Claire. I've only just seen this. I hope by now you are well on the road to recovery and are fit and well to cope with C'mas. Wishing you a very happy C'mas:xmas large:

banskogirl
16-12-2021, 00:41
Oh I'm sorry Claire. I've only just seen this. I hope by now you are well on the road to recovery and are fit and well to cope with C'mas. Wishing you a very happy C'mas:xmas large:

Thanks Pat x yes I’m back to work and was out having a lovely Christmas dinner last night! Now hoping no one else catches it before Christmas and we all have a lovely holiday!

Stell
06-01-2022, 12:02
When I saw my oncologist, before last Christmas, she told me that I should start thinking about having the breast removed. As she didn't want the cancer coming back or the remaining treatment to stop working. Does anyone know how long would it take for me to recover from the operation, if it went ahead?

Stell
13-01-2022, 18:49
I had a blood test, on Monday, after taking my dad to have his diabetic eye test. A nurse from the hospital phoned me, yesterday, and told me that I'd narrowly failed it and therefore they wouldn't be giving me any tablets. But, if I had another one by lunchtime today, they would give me the tablets when I go there tomorrow afternoon for my Zoladex injection as they were confident that there wouldn't be any problem with it.

Stell
14-01-2022, 08:38
Towards the end of last year, my niece Audrey got diagnosed as having autism. Then, it got reported, that all children from 12 years old would be having the Covid vaccines. Audrey also suffers from trypanophobia (fear of needle injections or hypodermic needles). So, she hasn't had and won't be having any vaccines unlike the rest of her class and school. Late last night, my sister texted me to say that this week, Audrey has been locking herself in the bathroom every day for up to eight hours and refuses to go to school. My sister and brother-in-law are at their wits ends about this and don't know what to do. Audrey will be 15 years old, later this year, so she should be now deciding what she wants to do with her life. I did wonder if she's being bullied by some other children at her school over her not having the vaccines.

clancy
14-01-2022, 09:17
Poor lass, what a worry for your family on top of that of your dad's journey and your own stressful situation. Mind yourselves. x

Stell
15-01-2022, 13:15
I found out, yesterday, Audrey was refusing to go to school because she wasn't being bullied by other children she was being bullied by her teachers.

I went to the hospital, yesterday, and they started my bones injection. I was told it would be once a month and I was told that I could do it myself, as it would be like having a vaccine. Instead, it was agreed that I should go back there on the 11th of next month for the next one while my next Zoladex injection will be done by my doctor in three months time.

Stell
10-02-2022, 18:58
I had a blood test on Monday. My oncologist phoned me on Tuesday and told me, I'd still got a low white blood cell count. But, she was satisfied for me to pick up my tablets on Friday (tomorrow) when I go to the hospital for my bone injection. She did tell me, she preferred for me to have the bone injection once every three months. I'll be seeing her again in April.

supergran
11-02-2022, 13:23
Since my first vaccination in Feruary have experienced severe joint pains and my mobility is affected. Three vaccines later and no real change. I now use a walking stuck it I go out and am reluctant to go any distance on my own. Tennis venues with steps is making me unsure of planning events such as Queens and Wimbledon as I don't have a tennis buddy for travel etc.. I did think it would eventually ease but have just walked the short distance to Tesco Express and had to stop on the way back because of The pain.

pabbers
15-02-2022, 10:33
Sorry to hear that SG. Hope it will clear up over time.

Stell
21-02-2022, 18:34
After what was announced today, I know my oncologist will be wanting me to have my second booster and fourth vaccine later this year.

Stell
04-03-2022, 10:59
I had my CT scan, yesterday, at the new Nightingale hospital. As I'll be seeing my oncologist, next month, I probably won't get the result until then.

Stell
08-03-2022, 18:53
I had a blood test, yesterday. I received the result, earlier, and it was fine. This month's bone injection is on Friday.

banskogirl
09-03-2022, 18:36
I had a blood test, yesterday. I received the result, earlier, and it was fine. This month's bone injection is on Friday.

Good to hear Stell :)

Stell
10-03-2022, 15:11
My sister and brother-in-law will be taking my niece to see an autistic school in Paignton tomorrow. They had hoped I'll be able to look after their dog for them. But, instead, our parents will be doing it.

Stell
17-03-2022, 09:12
As my oncologist now knows the CT scan result, I had to have another blood test yesterday. I received the letter, last Saturday, and the receptionist told me on Monday that it was very short notice for them. But, I managed to get an appointment.

During Monday night. my niece got very unwell with stomach pains. So, my sister took her to the hospital. They eventually got seen six hours later. My sister decided not to hang around for the urine test result. They went to see the doctor, yesterday, and got told it was an infection. My niece has to now take antibiotics.

Stell
17-03-2022, 18:44
If the fourth and fifth (booster) vaccines go ahead, I know I'll be having at least one or even both of them.

Stell
01-04-2022, 17:54
My dad and I will be having our second boosters tomorrow at our local Tesco car park.

Stell
05-04-2022, 17:56
I've had a rash on my right arm since Sunday. Luckily, I saw my oncologist today and she gave me some cream for it. She also examined me and believed my cancer is still going. When she looked at her computer, she found I'd already had had my CT scan a few weeks ago. She wasn't pleased that they hadn't sent the result to her, but she believed that it would show there would be no problem.

Stell
31-05-2022, 17:50
My oncologist phoned me, this morning, and told me that she'd finally received the CT scan result. She told me, the cancer was stable. She's going book another scan for me.

Stell
06-06-2022, 07:25
I received a letter from the hospital, last Saturday, saying I'd got an appointment for the 16th (next Thursday) for a CT scan at the Nightingale Hospital.

Stell
16-06-2022, 10:08
I had another scan, earlier. My oncologist might not get the result to either late August or sometime in September.

goldfish
16-06-2022, 12:14
That’s a long time to wait - hope it’s all good news.

Stell
17-06-2022, 10:55
I know, but they are weird. Everyone has to sit down, afterwards, for 10 to 15 minutes.

Stell
17-06-2022, 11:11
I've had to change my Zoladex appointment for the 4th of next month and got it moved to the 30th of this month because my sister, brother-in-law and niece will be going away on the 4th of next month and I've got to look after their dog.

Stell
27-06-2022, 08:57
I had another blood test, earlier. The nurse didn't realise that Wimbledon started today, though she told me she's a bit of an Emma Raducanu fan.

Stell
29-06-2022, 10:07
My oncologist phoned me, yesterday, and told me that I'd slightly failed the blood test but she would allow me to have the tablets. I told her about the dentist. I told her, I believed the dentist who I saw in February had left and her replacement didn't want to see me for a check up until September (though my check up was supposed to have been this month). My oncologist was furious and told me, she would be contacting the dentist about she thinks of him/her and why I should have had it this month and not in three months time. My oncologist also decided to cancel Friday's bone injection.

Stell
22-07-2022, 18:20
I had my 'other' blood test today. The nurse told me, she also had breast cancer in her right breast and had it removed. She's now expecting to be given the all clear. I've got another blood test next Monday.

banskogirl
22-07-2022, 20:17
I had my 'other' blood test today. The nurse told me, she also had breast cancer in her right breast and had it removed. She's now expecting to be given the all clear. I've got another blood test next Monday.

I was out for tea a few days ago, with my friend who had a mastectomy a few years ago. We ended up in a clothes shop like two teenagers, trying on everything! No one would ever know what she went through if they hadn’t known her at the time!
When we came out our other friend pretended she wasn’t with us because the staff had been talking about the laughing we were doing and how long it was taking us!

Stell
23-07-2022, 09:07
That's a shame.

Stell
26-07-2022, 17:54
A nurse from the hospital phoned me, today, to say my calcium was too low for their liking. So, I'll be only picking up my hormone tablets tomorrow. My bone injection got cancelled, again, because the dentist's receptionist told me that the dentist still won't be able to give me a check up until September. Both my blood tests, for the 19th and 22nd of next month, had to be cancelled. Instead, my next blood test will be on the 10th of next month. A nurse will then phone me on the 11th and the tablets will be ready to be picked up from the hospital on the 12th of next month.

Stell
17-08-2022, 17:52
The oncology's receptionist had to phone the Cherrybrook department and reminded them about the phone call, last week. I was able to pick up my tablets.

I went to see the hospital, today, to have my eyes checked and got told that my right eye is in the early stages of a cataract. When I arrived home, there was a letter from the hospital saying my oncologist's appointment for next Wednesday had been cancelled and I would now be seeing her on the 6th of next month. She was due to give me the CT scan result which I had done in June.

While I was in Birmingham, during the Commonwealth Games, my dad got the next door neighbour to phone the police. When they turned up, my dad told them about the next door neighbour discriminating against him. Then, a woman from Adult Safe Guarding phoned me last week and told me to contact my dad's doctor. I did. Today, a woman from Care Direct phoned to say she'd spoken to my dad's doctor and thought the same mental health people could come back and talk to me and my mum. This will be the second time, but what will happen when the police get called next year again and in the future?

Caro
19-08-2022, 06:25
Sorry to hear about your troubles at home stell … as if you haven’t got enough on your plate with your health.

I volunteered at the commonwealth games at Alexander stadium and I think I saw you there but I wasn’t certain it was you or not. I hope you enjoyed yourself.

Stell
22-08-2022, 08:56
I was there, Caro. A female spectator, who I believe was a nurse, gave me her Commonwealth Games hat to wear as my face got a bit sun burnt even though I did put loads of suntan lotion on. Also, I had my photo taken as I used my flag to cover my head during the rain. I know it would have ended up in a newspaper or website somewhere.

Stell
26-08-2022, 17:36
A woman called Sharon from Adult Safe Guarding and a man called Chris from the Mental Health team will be coming next Thursday to talk about my dad. It has been suggested that he should go into a care home.

Teresa
29-08-2022, 15:41
I have just had Covid - fairly mildly. Having my second knee replacement on the 5th October.

cazza99
29-08-2022, 16:17
Glad you got Covid mildly. Better to get it now I guess than when you are in hospital.

Stell
07-09-2022, 10:20
I saw my oncologist, yesterday. She told me, she couldn't believe how long it took for the CT scan result to come through. The good news was, it showed the cancer is still stable and the blood test result was fine.

goldfish
07-09-2022, 11:08
That’s good news Stell

banskogirl
07-09-2022, 21:04
I have Covid, again! :facepalm: my brother has it too and feeling much better than I am!

cazza99
07-09-2022, 23:04
:grouphug: Banskogirl. Hope you feel better soon.

Stell
12-09-2022, 07:02
Does anyone know anything about sheltered housing? My sister believes our dad should go into one.

Stell
30-09-2022, 17:47
I saw my dentist, earlier today, and he gave me the thumbs up to have the bone injection next week.

Stell
04-10-2022, 17:55
I had my blood test, yesterday morning, and then my Zoladex injection yesterday afternoon. A nurse phoned me, earlier, to say my blood test result was fine and my oncologist will try and get me an appointment for my bone injection for this Friday.

Stell
08-10-2022, 09:06
I phoned the Cherrybrook department, on Thursday, as I had no idea whether my bone injection would be going ahead or not. As usual, I got their answering machine. A nurse from the oncology department phoned me back and told me, there was no record of me seeing the dentist last Friday. Also, she knew nothing about Tuesday's phone call. She then told me, someone from Cherrybrook would phone me. They never bothered. Yesterday, when I went to pick up my tablets from Boots, I went to Cherrybrook. The receptionist confirmed what I'd been told, but she knew about the oncology nurse's phone call. She then got the woman, who makes the appointments, to give me one. She made it for next Tuesday.

Stell
11-10-2022, 11:31
I had my Covid booster vaccine, last Saturday. I'll be having my flu vaccine next Saturday, as they aren't allowing anyone to have the two vaccines done in the same arm.

I had my bone injection, earlier. While I was there, I found out that I'll be having a scan on the 2nd of next month. The nurse blamed the Royal Mail strikes, as I still haven't received the letter.

Teresa
12-10-2022, 09:35
Came out on Monday after my left knee replacement. Blinking agony. Glad to be out though.

pabbers
14-10-2022, 19:20
Wishing you a speedy recovery Teresa.

cazza99
14-10-2022, 20:31
Hope your knee is improving Teresa. :flowers:

Jan
14-10-2022, 21:05
Yes, hope you make a good recovery :flowers:

clancy
15-10-2022, 11:51
Good that it is over and you're home; hope you're feeling better day by day. x

RosieBear
16-10-2022, 11:23
Hope you get better soon Teresa.

Teresa
17-10-2022, 10:50
Thanks. Getting better by the day, but still grim. Had friends here for the first week. Flying solo from today.

Have the physio in tomorrow. Will get an idea of where I am at. Knee still very swollen, but can get on my mobility scooter. Dog coming home Sunday.

Stell
03-11-2022, 18:55
I had my scan, yesterday, though the result probably won't be known until next January or February. As usual, I had to sit down for ten minutes afterwards. As the nurse took the needle out of my arm, she told me not to drive for one hour. I think she got a bit confused with another female patient who felt a bit dizzy after her scan and had to have her blood pressure taken.

Stell
25-11-2022, 09:03
I'm glad I won't be affected by the nurses strike, next month, but I feel sorry for everyone else who could have their appointments cancelled because of it.

Stell
08-12-2022, 11:14
I saw my oncologist, on Tuesday. She told me, Monday's blood test had shown I'd got a low white blood cell count. Though tomorrow's bone injection will go ahead, she wants me to have another blood test.

Stell
17-01-2023, 19:22
My oncologist got it wrong, as the December blood test result had shown it was worse than a low white blood cell count. So, I had to have another blood test and then my bone injection just before Christmas.

I had my Zoladex injection on the 6th of this month. Yesterday, I had my first blood test for this year. But, nobody phoned me today with the result. I'll be booking next month's blood test tomorrow (I won't be affected by the nurses' strike) and go to the hospital on Friday for my bone injection.

Stell
18-01-2023, 19:17
I've now got an appointment to see the dentist on the 15th of next month.

Stell
28-01-2023, 10:40
I had a phoned call from a nurse at the hospital, yesterday, saying my oncologist didn't like the blood test result. The reason given was the same as the last one and I'm also a bit anaemic. The blood test was booked for next Tuesday at the hospital. I was told next Wednesday's scan must go ahead, though I still haven't received last November's scan result. Also, I've got to let my oncologist know what the dentist did after I've seen him/her. I was allowed to pick up my hormone tablets from Boots at the hospital. Before I left, my dad had another go at the wife of the next door couple. He called her and her husband names and creeps. I don't know if she or her husband have phoned the police.

Stell
03-02-2023, 10:08
A nurse from the hospital phoned me, yesterday, saying Tuesday's blood test result had shown my neutrals and white blood cell count were so borderline that my oncologist wanted me to have another blood test today. If she likes the result, the bone injection will go ahead afterwards. If she doesn't, I've got to have another blood test next week.

Stell
03-02-2023, 18:48
I had the blood test and then had to wait about four hours before being told, my bone injection would be going ahead.

Stell
10-02-2023, 18:42
I had a letter from my oncologist, today, saying last November's scan had shown the cancer is still stable.

clancy
11-02-2023, 07:43
You have a lot to contend with right now Stell, take care.

Stell
16-02-2023, 18:46
Thanks clancy. I saw the dentist, yesterday. She wants to see me again on the 8th of next month. I'll be supporting the nurses strike, next month. The nurses on the cancer ward, in my hospital, will also going on strike. On the 3rd, of this month, there were only two nurses looking after the seven of us in the one room and they were both exhausted.

Caro
23-02-2023, 11:52
I used to be a nurse in a chemotherapy unit. It was always very busy and we never got off on time. I enjoyed the work though and I worked in cancer care almost my whole career. 10 years was in chemo.
I’m pleased to hear your scan showed the cancer was stable Stell. I wish you well with your ongoing treatment, Take care.

Stell
01-03-2023, 10:10
A nurse from the hospital has just phoned me to say my oncologist didn't like Monday's blood test result. It means, I've got to have another one on Friday. She told me, my oncologist is now very worried and might have to start thinking about doing something about all these failed blood tests. I told her about my dentist's appointment next Wednesday.

Stell
03-03-2023, 18:46
I had my 'emergency' blood test at the hospital, today. But, when I got there, someone had been knocked over by a speeding driver and I can only hope that the person is okay.

Stell
07-03-2023, 14:11
A nurse from the hospital phoned me, earlier, saying my oncologist didn't like the blood test result. She told me, I'd got a low neutrals count again. I've got to have another 'emergency' blood test on Friday. Then, my oncologist will then phone either next Tuesday or Wednesday with the result. She believed my oncologist will do something about all the failed blood tests and will let me know what she's decided when she phones me.

Stell
07-03-2023, 18:33
I know I've got to have my Covid booster vaccine, which will be offered to everyone aged 75 and over and the vulnerable between the 17th of next month and 30th June.

banskogirl
11-03-2023, 15:59
I know I've got to have my Covid booster vaccine, which will be offered to everyone aged 75 and over and the vulnerable between the 17th of next month and 30th June.

How do they make you feel?

Stell
12-03-2023, 11:21
The last one, which I had which was two weeks before my flu vaccine, made me feel like I'd got the flu. When I had my spring Covid booster, last year, I had very slight flu symptoms but I developed a rash on my right arm. My oncologist gave me cream for it and it went away a few days later. I had the spring one done in my local Tesco car park, even though my oncologist would have written a letter to NHS England saying I was eligible. I should think I've got to prove it again, like last spring, when I showed them my chemo and hormone tablets.

I had a letter, yesterday, from the hospital saying my oncologist won't be phoning on Tuesday. Instead, it'll be another female oncologist.

Stell
14-03-2023, 10:15
The oncologist phoned me, earlier, saying my low neutrals count was now borderline. She would either talk or send an email to my oncologist to find out what she's decided to do and then phone me back.

Stell
15-03-2023, 18:41
I had to phone the oncology department today, as she didn't phone back. She, eventually, did phone me and said my oncologist was happy with my blood test result and therefore my bone injection will be going ahead on Friday.

Stell
17-03-2023, 09:05
A nurse from the hospital phoned me, yesterday, saying she didn't understand why I would be having a bone injection without having had a blood test first. I told her, I'd had one last Friday. She apologised and told me, she'd remembered seeing the blood test result on the computer. She then told me, my bone injection would be cancelled as I'd failed the blood test. I told her, my oncologist was happy for the injection to go ahead even though my neutrals count was borderline. She had to apologise again.

banskogirl
26-03-2023, 08:52
A nurse from the hospital phoned me, yesterday, saying she didn't understand why I would be having a bone injection without having had a blood test first. I told her, I'd had one last Friday. She apologised and told me, she'd remembered seeing the blood test result on the computer. She then told me, my bone injection would be cancelled as I'd failed the blood test. I told her, my oncologist was happy for the injection to go ahead even though my neutrals count was borderline. She had to apologise again.

It’s a good job you have a good memory Stell!

Stell
31-03-2023, 17:44
The dentist signed me off, on Wednesday. Luckily, another NHS dentist is interested in taking me on as a patient.

Stell
02-04-2023, 08:09
I had a letter, yesterday, from the hospital saying the phone call for my blood test result for the 12th of this month had been cancelled. Instead, my oncologist will be phoning me next Monday (tomorrow). I'm hoping it's not bad news.

Stell
03-04-2023, 11:01
My oncologist phoned me, earlier, saying, she wanted next Tuesday's blood test cancelled and she would be cancelling next Friday's bone injection. Instead, the blood test is now scheduled for the following Monday with the bone injection on the Friday (21st).

Stell
08-04-2023, 09:59
I had a letter, earlier, from the hospital saying Boots at the hospital will now be stopping supplying my hormone tablets. I've now got to get a repeat prescription from my doctor for them. I'll be talking to the receptionist, next Tuesday, at my doctor's surgery about it. It does seem to be worthwhile, for me, as it seems my oncologist is now wanting me to have a blood test once every five weeks instead of once every four weeks and my hormone tablets can't last that long.

Stell
12-04-2023, 17:54
I was able to book my Covid booster vaccine for the 29th of this month, today.

Stell
18-04-2023, 17:50
I had this month's blood test, yesterday. A nurse from the hospital phoned me, earlier, and told me that my neutrals count was too low for their liking. But, she didn't know what my oncologist will want to do next. Someone will phone me tomorrow.

Stell
22-04-2023, 08:20
I went to have my bone injection, yesterday. While I was there, I showed the nurse the letter which I'd received on Easter Saturday saying Boots at the hospital wouldn't be supplying my hormone tablets anymore. She told me, everyone who have to take them or similar ones, got the same letter. I told her, I'd talked to the receptionist at my doctor's surgery about it. She'd believed it wasn't their problem but had got one of the doctors to phone me. He'd told me, to go back to the surgery and get the receptionist to photocopy it and give the copy to my doctor. I did and never heard back from him. The nurse was very angry, as she told me, they'd written to my doctor about this and couldn't believe that he wanted to play around with my health. The nurse then told me, it was a low neutrals count. Instead, it was something to do with my calcium and wanted to know if my doctor had prescribed calcium tablets. She wasn't impressed, when I told her no. I then told her, my oncologist had phoned me on the 3rd saying she wanted me to have a blood test once every five weeks. The nurse was puzzled, as there was no note about this on my record. I told her, the labels (which the nurse at the surgery wants) had turned up saying the 23rd of next month. But, she'd booked me in for the 22nd. The nurse told me, the next blood test is supposed to be on the 15th and she messaged my oncologist. But, she'd already gone home and won't read it until next week.

Stell
24-04-2023, 09:01
I went to my doctor's surgery, earlier, and the receptionist agreed to put my hormone and calcium tablets on prescription.

Stell
17-05-2023, 17:47
I saw the new dentist, yesterday. He told me, my previous dentist had done such a good job that I didn't need anything doing. So, I was signed off straightaway and I've got to find another dentist.

Stell
18-05-2023, 10:13
I had another scan, earlier today. The result won't be known until August. I told them, I'm still waiting for February's scan result and they thought I was making it up. A woman, who had her scan before me, told me that she only has to wait two to three weeks for her scan results.

Caro
20-05-2023, 15:11
I had another scan, earlier today. The result won't be known until August. I told them, I'm still waiting for February's scan result and they thought I was making it up. A woman, who had her scan before me, told me that she only has to wait two to three weeks for her scan results.

Do you have a specialist nurse at the hospital for your cancer stell? (A breast care nurse / MacMillan nurse perhaps?) You could contact them and tell them you still haven’t had your scan result and they will be able chase it up for you. You should always be told your scan results.

Stell
21-05-2023, 10:20
I do have a breast nurse, who does occasionally phone me. A letter, which has since arrived, said someone from the oncology department will phone me on Wednesday with tomorrow's blood test result. My brother-in-law told me, I always seem to be waiting for some sort of result.

Caro
22-05-2023, 06:45
If you are ever waiting for results, do phone your breast nurse to ask about it. They will be happy to help I am sure.
You can ask about getting your scan results when you get the phone call on Weds. I hope it’s good news for you x

Stell
22-05-2023, 17:43
It is good news, Caro, as I received a letter from my oncologist today after I had had my blood test. February's scan result shown the cancer was still stable, so the same treatment will continue until this month's scan result is known.

Stell
24-05-2023, 17:55
A nurse from the oncology department at the hospital phoned me, earlier, saying I'd got a low neutrals count again. I've got to have another blood test tomorrow and they might accept that result in order for the bone injection to go ahead on Friday. She told me, they were delighted with February's scan result. If the next scan result shows the cancer is either still stable or going, they might stretch it to once every four months or so. She also told me, the blood test will remain at once every five weeks. But, it'll now be on a Wednesday. So, the next one will be on the 28th of next month instead of the 26th of next month.

Stell
25-05-2023, 17:51
I had my emergency blood test, earlier. The same nurse then phoned to say they were happy with the result and, therefore, tomorrow's bone injection will go ahead.

Caro
25-05-2023, 18:38
It is good news, Caro, as I received a letter from my oncologist today after I had had my blood test. February's scan result shown the cancer was still stable, so the same treatment will continue until this month's scan result is known.

That’s great stell. I am happy for you :)

patmoren
17-06-2023, 18:48
Just had my first Cataract op. at Spa Medica which is a private hospital just for cataract ops which is contracted to the NHS. It was absolutely amazing, everything very well planned from your entry through the door to leaving 3 hours later op completed and your follow up apt in your hand. By the following morning I didn't feel as though I had had surgery except for having to instill drops 4 times a day for 3 weeks. I was very impressed. The colours from the new lens are so much brighter and clearer.

Stell
29-06-2023, 18:12
I was diagnosed, last August, as having a cataract in my right eye. I was told to contact my local Boots, when I start to lose the sight in it.

I had a blood test, yesterday morning. A nurse phoned me, yesterday afternoon, saying I'd got a low neutrals count again. She told me to have an emergency blood test early Friday morning (tomorrow) and a nurse will phone with the result.

Stell
30-06-2023, 17:44
Nobody from the hospital phoned, so I went back to the hospital and the bone injection went ahead.